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kelley and
shawn gos |
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01/Dec/2000:23:24:47 |
WE HAD A BABY BOY NAMED SHAWN JR WHO WAS BORN AT 32
WEEKS AT MASS GENERAL HOSPITAL IN BOSTON MASS. ON
MAY 12, 2000 HE WEIGHED 3 PDS.9 OZ.AND WAS 14 3/4
INCHES.I WAS BROUGHT IN TO HAVE A EMERGENCY
C-SECTION BECAUSE MY PLACENTA MOVED A AWAY FROM THE
WALL AND WAS CAUSING BLOOD CLOTS THAT WERE BIGGER
THEN MY SON.HE WAS BORN BLUE AND LIMP AND WAS
BROUGHT TO THE NICU DEPARTMENT WERE HE SPENT 1 MONTH
1 WEEK HE WAS ON A RESPIRATOR FOR 4 DAYS AND HE 2
HAD BRADY AND APENEA EPSIODES HE WAS TO COME HOME 4
TIMES BUT DID NOT DO SO DUE TO THESE EPSIODES.
FINALLY THEY
DECIDED TO PUT HIM ON CAFFEINE CITRATE WHICH WAS
GIVING ONCE A DAY TO MAKE SURE HE DID NOT HAVE ANY
MORE EPSIODES HE WASTO GO 5 DAY SPELL FREE BEFORE
BEING SENT HOME WITH THE HELP OF THE CAFFEINE.WHICH
TODAY IS ALMOST 7 MONTHS WEIGHS 12 PDS 6 OZ AND NO
LONGER HAS PROBLEMS WITH APENA AND D SATS.UNLIKE YOU
I HAD A GOOD EXPRIENCE WITH MASS GENERAL NICU THEY
TREATED MY SON WONDERFUL AND DID NOT SEND HIM HOME
UNTIL HE WAS READY.I AM SO GLAD... |
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Claudia Delgado |
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17/Nov/2000:17:21:39 |
Hi everyone my twin boys were born at 27 weeks
weighing in 1 lb. 10 oz. -&- 1 lb. 11 oz. Wow
what a emotional rollarcoaster the NICU was. They
were at the childrens hospital at Stanford, which is
about 30 minutes away. Driving every day to see them
for 4 and a half months was hard...but I just thank
God that they are alive. My boys are now 3 and
although they are developmentally delayed and one
has vision problems I still can't believe sometimes
they made it. All these preemies are such troopers.
A true insipation to me. If anyone
out there wants to talk or just vent please email me
knowing I know what it's like. That is often a
frustrating feeling since none of my friends with
kids really know what having a preemie is like. |
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Heather |
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11/Nov/2000:01:33:37 |
I just wanted to say congratulations and best wishes
to everyone who views this page and reads the
stories of all these tiny little troopers who make
it their business to light up our lives, even if
some only for a short while. My best friend had a
baby 4.5 months too soon and he was
not even a pound. After struggling for an hour he
decided he would be better off at home with his TRUE
Father, so I want to say hello to my Angel up in
Heaven, Colin Michael . |
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jodi bellomo |
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23/Oct/2000:00:14:58 |
Thru the past 4 yrs of parenting my twin 4 yr olds,
born at 26 wk gestation, I need to tell parents of
other preemies, it is so important that if you can
be with them in the NICU it makes all the
difference, they need to feel your touch and hear
your voice. and when they come home never treat them
different than a full term baby take them to early
intervention find out what you need to work on and
do it. My daughters were in intervention from 3mos
until 18mos., they were released at a 32mos level
and they threw the doctors threw a loop with their
milestones and strides. I never went by my girls
corrected age, I always used their real birthday and
I spend every minute I can helping them grow
emotionally and intellectually. They are now in
preschool and they are 2 of the smartest kids in
their class (if not the smartest)!!!!!!!!!!!!!!!
They know that they are special but not because they
were preemies, because they are Jackie and Jocie.
Although, the doctors will tell you your
children.... |
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Jodi P. Bellomo |
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22/Oct/2000:23:59:53 |
My daughters Jacqueline 2lb6oz and Jocelyn 2lb2oz
were born on August26,1996.,at 26 wks gestation.
Both needed help breathing, jaundice, BPD, blood
transfusions, apnea, etc. Today they are healthy 4
yr olds, I just wanted to add this to help anyone
going thru this experience now. Until my girls were
no longer on meds I kept a log of their meds, (they
were on so many), I used 1 notebook for Jocie and
another for Jackie so that there was no confusion.
This made a hard situation a lot easier. Mommies of
preemies have a lot racing thru our minds, and the
log books helped me to know which child had her meds
and who needed theirs. This also worked with
feedings. We tend to get a lot less sleep than
parents of full-term healthy babies, and dealing
with 2 sick preemies the log really made a
difference. Also, I called the dr.
for everything, that is what he/she is there for so
don't feel you are being a nuisance that is in their
job description. God be with you all and Bless all
of our children.
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Jodi P. Bellomo |
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22/Oct/2000:23:00:32 |
Thank you for your story it brought back so many
memories of my experience with my daughters
Jacqueline 2lbs6oz and Jocelyn 2lb2oz and their stay
in the NICU. They were born at 26 weeks gestation.
There was many a days I thought I was not going to
make it thru, but seeing these 2 tiny little babies
able to make it made their mommy keep going. Now
they are 4 years old, they were born on August
26,1996., and they are the joy of my life. I
couldn't imagine if things would have turned out
different were I would be without them in my life.
Thank you again,
Jodi Bellomo |
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julie |
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06/Oct/2000:15:09:12 |
My water broke at 24 weeks, and after 8 weeks of bed
rest Chloe Rose was born(32 weeker)at 5#6oz; but
since I had no water that 8 weeks she was very sick.
She had 3 blood transfusions, jandice, hydrcephalos,
(sp?),+ much more. The water on the brain was not
discovered till half
her brain was eaten up by the enlarged ventrical.
She came home on O2. Her first 2 years required
therapy for EVERY MILESTONE, but she is catching up.
She is 25 months old -&- the joy of my life. Her
start wasn't an easy one, but looking at her, you'd
never know it. |
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Robin S. |
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31/Jul/2000:22:31:48 |
My daughter Sara was born at 28 wks, 1lb 7oz on
1/14/92. She came home 7/5/92 weighing 7lb 6oz. She
had the usual preemie problems; BPD, severe reflux,
Grade 2 bleed, kidney stones, etc. She has had a
feeding tube since before she came home, and has yet
to learn to eat properly. She will have to repeat
kindergarten because of learning difficulties and
has recently been put on Adderall for her attention
problems. She now weighs 35 lbs at 6 1/2 yrs of age.
I read many preemie stories on the net and would be
happy to hear from anybody who
has similar experiences. |
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Tabitha McIntire |
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20/Jul/2000:20:50:01 |
The doctors didn't even think that both of them were
going to make it, but I delivered two beautiful
little girls. Both girls were doing great within 3
days they were both in room air and they started
their feeds. The only set backs were that Desiree
had a heart murmur and Emily had a small case of
jaundice. I received a phone call on the 7th,
it was the nurse saying that Emily was a little sick
and that the doctors thought it was an intestinal
infection. When we got there the doctors said that
she did in fact have NEC, they had started MEDs but
they didn't seem to be helping. They made the
decision to send her to surgery. She made it though
surgery, but they had to remove almost all
the small and large intestine. Which meant she
probably would have to be fed intavenously for the
rest of her life. In the hour after surgery she was
again on a vent and they had to recesitate her 3
times. We needed to make the hardest decision of our
life and we chose to remove the vent. Want.... |
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Tabitha McIntire |
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20/Jul/2000:20:31:10 |
Our identical twin girls Desiree Leslie and Emily
Jean were born on April 27, 2000. Desiree was the
first to be born weighing 3lbs 10 ozs and Emily
weighed 2 lbs 9 1/2 ozs. They were born at 32 weeks
gestation. I guess I should probably go back to the
beginning, I found out I was pregnant in November of
'99, which was totally by mistake. Then in December
I found out we were having twins, my doctor believed
they were monoamniotic (meaning they were sharing
the same amniotic
sac) so I had to change doctors. Then when my new
doctor did an ultrasound they ruled that diagnoses
out and they thought I had stuck twin syndrome which
meant a second opinion and another new doctor. They
sent me to a specialist in Grand Rapids which is a
45 minute drive
from where we live. He said I did indeed have stuck
twin syndrome, it was caused by twin-twin
transfusion. This was all occurring in my 18th week
of preganany, from that time until my girls were
born I had 11 amniocentisis. The doctors did... |
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Tabitha McIntire |
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20/Jul/2000:19:53:51 |
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Steve and Tessa |
Kirsten
and Chesley's Playground |
04/Jun/2000:21:41:59 |
Your twins look wonderful. We can relate. Our girls
were born at 28 weeks and have survived Twin to Twin
Transfusion. They still have not caught up today. At
almost 14 months they weigh 15lbs and 18lbs.
However, they have been blessed with no
disabilities; so far!. You
have a wonderful page. |
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Natalie
Potter |
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31/May/2000:20:52:37 |
Hi! I appreciated reading all of yoru stories. It is
really nice to know you aren't alone. I have two
children. I went into labor at 23 weeks with my son,
but miraculously due to faith, prayers and a
wonderful doctor he wasn't born until 38 weeks and
was absolutely fine. It was a horrible four months,
but the outcome was worth it. When I was pregnant
with my daughter I was again having a difficult
pregnancy, and at 31 weeks went into labor. It was
temporarily stopped with bedrest and medication.
Three weeks later, I went into labor again and spent
the next eight days having mild contractions every
five minutes while my doctor insisted that it was
his policy not to deliver
until 36 weeks. Finally he consented and allowed me
to have the baby and Kyrie Nicole was born shocking
everyone when she tipped the scales at 7 lb 1 oz.
But she was not breathing and the NICU team rushed
her away from me. Somehow they got her breathing and
they sent her home with me the next day saying... |
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Sabrina |
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30/May/2000:19:41:12 |
I'm so glad your girls both made it and that you put
together a site for preemie parents and others to
visit. I know you cherish your children and that
they are a great joy to you.
In looking through the guestbook, I am feeling,
though, like I'm the only preemie mom whose baby did
not survive who has come to your site. Maybe I'm
just the only bereaved mom of a preemie who still
wants to read about other preemies' stories...but to
me each baby is precious
and a miracle, and I am heartened to know that most
preemies do come home.
Our son Ethan was born at 31 weeks, weighing 2
pounds, 7 ounces. Little E lived his entire life in
the NICU. He lived for 4 1/2 months before his death
on January 19, 1997. Ethan had very serious problems
with his lungs, worse than most preemies his size
and age, because his medical
condition was complicated by Marfan's syndrome,
which affected the lung tissue and made it
impossible for Ethan to grow healthy lungs. We have
millions of Ethan stories and... |
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viktoria jovanovic |
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18/May/2000:05:22:24 |
Hello, our daughter was born at 23 weeks gestation
at Mount Sinai Hospital in Toronto Canada. Suffice
it to say that we have had our share of ups and
downs but thanks be to God, all is well and we are
due to come home any day now. To date, she has been
in hospital for 105
days of which the only major problems have been
respiratory. At the moment we are trying to fix her
eyes and then we are homeward bound. Thank you to
all of the parents who have written stories of
support. They have really helped us manage our very
difficult time. |
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Cathy Dowell |
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26/Apr/2000:14:41:35 |
Hello, I just read your story and was brought to
tears as I always am with the preemie stories
because they hit so close to home. My daughter was
born on 11/11/99 at 27.3 gestation weighing 920
grams, 2lbs, almost 1 ounce. She came home on
2/4/00, she was due on 2/13/00. It was (and I'm sure
always will be) the biggest nightmare of
our life. It's amazing how callous the doctors can
be. It still is a struggle now, but more within
ourselves than anything else. Our biggest
complication now are her eyes. She had a lensectomy
in her L eye and wears a contact lens in that eye
daily. We are very happy to have her and she is a
very spoiled little girl. :) :) |
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lisa |
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18/Apr/2000:10:50:00 |
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hi I ENJOYED READING YOUR STORY. I ALSO HAD 2
PREMIES . ONE WAS BORN AT 33 WEEKS, THE OTHER AT 30
WEEKS. BOTH DUE TO HIGH BLOOD PRESSURE. THEY ARE
BOTH DOING GOOD NOW, BUT FOR A WHILE IT WAS TOUCH
AND GO. |
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Nicky Wallace |
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13/Apr/2000:04:03:41 |
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Donna Wilde |
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09/Apr/2000:08:49:01 |
My third was born 14 to 16 weeks premature back in
1985. According to my calculations he was only about
10 to 12 weeks early. He suffered amassive head
injury. He needed a shunt due to eccess fluid on his
brain. He was big (4 pounds 6 ounces so our doctor
mistakenly did not
check him over well enough and missed the fact that
his little lungs were not developed. (my babies
typically weigh in at 10 to 12 pounds) He was care
flighted to Fort Worth Tx NICU where he stayed for 3
months. We made the trip every Wednesday and
Saturday. More often if needed. We brought him home
thinking that all was going to be ok. It was just
the beginning of many trips appointments and
surgerys. He got meningitus 2 times in one month. He
cried about 20 hours a day and could not eat so
finally had to have a feeding tube which he still
has to day (it saved
hs life) I don`t want you to think it has been all
bad. This little boy his the sunshine in our lives.
Through him we have learned many things and met many
people... |
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kai |
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05/Apr/2000:20:31:54 |
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my son was 860 gm at birth 27 wk gest. kids r great |
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christine
baker |
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23/Feb/2000:01:22:28 |
My twins were born 7-21-92 11 weeks pre-mature.
Brett weighed 2lbs 15ozs and Bryce weighed 3lbs
7ozs. Brett was the stronger of the two and first
born, even though he was a smaller. Bryce was having
a more difficult time breathing and had to
eventually be placed on a ventilator. Brett was
moving right along being gavage fed and gaining
weight, until 6 days after birth. The neonatalogist
came to us and said that he was not digesting his
feedings very well and they are going to back off
until they have some tests ran. Brett laid there
getting worse by the day. His once bright pink skin
soon became gray, his body seem to be drained of
energy, and his stomach very distended. The
surgeon came in and said that he did not feel
comfortable with Brett's down-ward turn and wanted
to immediatley do sugery. He told me about the
possibility of a colostomy (which I had never heard
of at the time) and also the seriousness of the
illness. Brett was then rushed to
surgery... |
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beth |
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14/Jan/2000:17:40:00 |
MY TWIN GIRLS WERE BORN 6 WEEKS EARLY THEY WEIGHED
4lb 9oz and 3lb 12oz
when i was 20 weeks preagnant the twins developed
twin to twin transfusion syndrome which can be a
really fatel condition for twins when the hospital
told me i thought i might have to lose them but
after more tests they allowed the pregnancy to carry
on .then when i was 32weeks i develiped pre
eclampsia so i was in hospital for two weeks
then on october the 7 i had a caserian the twins
were in special care for two weeks but for the first
day i couldnt hold them because they were in
incubatosbut by the next day they were both out of
them and doing well.
The twins are doing ok now but they have a lactose
defficency and they have to drink soya milk |
